So, about me. I opened up the page, typed in the title, set my fingers on the keyboard…..
Then I pulled a blank. You know when someone asks you what your favourite song or artist is and even though you definitely have at least 300 amazing albums on your phone, you panic and can’t remember a single one?
Yeah. So that happened to me. With my whole personality. How is that even possible?! I’ve been around 16 years, so I’ve seen my fair share of sights, visited a lot of places and generally done a lot of living (for a sixteen-year-old at least). But all I can think to tell you is that my name is Jess. Rubbish, right? Well, I could tell you that I have brown, shoulder-length hair, brown eyes and I’m 5’6″. But you don’t want to know any of that, it’s boring! Instead, I’ll talk about my blog – I know about that.
I never wanted to be a writer of any sort. I hated the idea of having to write long pieces of writing everyday! It wasn’t ever one of my favourite lessons in primary school and one of my most difficult throughout high school. But for some reason way back on the 31st of December 2012 I made my new year’s resolution to make a blog. I had no idea what I wanted to write about or even why – I just felt the need to copy my mum at the time and have a blog.
It was absolutely awful.
I have since deleted it, for the benefit of the poor souls who stumbled across it. So, a year after I gave up my first blog I decided to try again, despite it being a complete flop the first time, and started up a new blog. It went better, I was blogging every 3 or so days which after a few months I couldn’t keep up. I decided to switch over to twitter but kept my blog for later.
Eventually I restarted my blog, deleting my old posts and giving it a new name – Pancreas-less and Proud. (I can’t remember the old name!) You can go and check out that blog at pancreas-lessandproud.blogspot.com . Now, another year down the line (I have no idea if any of this adds up for 12-16 years old…) I’ve been recommended wordpress, so I’m trying it out!
I know you still don’t know much about who I am so I’ll give it another shot. This time I’ll try from another angle….
Diagnosed: 2000, 3months old.
Insulin pump: Minimed 640G
Lowest low: 0.3 mmol/l
Highest high: Over 33.3 mmol/l
Music: Adele, Ed Sheeran, Pentatonix, Imagine Dragons and The Script are among many of my favourites. But I especially love covers of popular songs by unknown artists and mashups of songs on youtube.
Aspirations: I would love to go to medical school and become a doctor, possibly paediatrics. Then a sub-specialty I hope!
Fun fact: I see letters and nmbers in colour! I also see the days of the week and months in colour and I see number lines and timelines in 3D spaces. All of these are variations of a neurological condition called Synaethesia – It’s brilliant! I absolutely love having it. I grew up believing everyone saw the world in this way, that this was normal and wuld mention it very rarely. Whenever I did, I was asked to test because it sounded like I was hypo. Eventually, when I was about 14 I told my friend that she had a very pretty name, colour wise. She looked at me like I was crazy and speaking a foreign language (in hindsight- I’m not surprised!) but my one-to-one T.A. sat down next to me and said her daughter and her both had it, although different variations. I couldn’t believe I had this wonderful thing and that not many other people did too!
This is the UK Synaesthesia Association’s explanation – “Synaesthesia is a truly fascinating condition. In its simplest form it is best described as a “union of the senses” whereby two or more of the five senses that are normally experienced separately are involuntarily and automatically joined together. Some synaesthetes experience colour when they hear sounds or read words. Others experience tastes, smells, shapes or touches in almost any combination. These sensations are automatic and cannot be turned on or off. Synaesthesia isn’t a disease or illness and is not at all harmful. In fact, the vast majority of synaesthetes couldn’t imagine life without it.”
I don’t really know what else you would want to know about me, but you can find my full medical story and current regime on the ‘My Diagnosis page’.
So…. that’s me!