My Week Off CGM

Recently I went on holiday to America (which was amazing! Florida even in the winter is SO HOT). But, I managed to break my sensor transmitter on Day 2 of a 10 day holiday…… It definitely wasn’t the best of starts.

Primarily I use my sensor for two things, hypos and nighttimes. So usually without sensors I hypo constantly because I drop so fast I bypass symptoms. My sensor usually slows them down by stopping insulin making it easier for me to detect them but of course no sensor = no suspending insulin. The other biggie is of course nighttime. We use it as (almost) a replacement for nighttime testing. Instead of my poor mum waking up every 2/3 hours to check my bloods, she can rely on my sensor to alert her when I’m going out of range.

So when we realised we would have no sensor (so no safety blanket) in a foreign country with hypo-inducing hot weather and unknown food with unknown carbs, we panicked. I’ll admit we completely freaked out.

It was certainly a learning curve. We had to rethink how we bolused for food to prevent lows, use temp basals instead of rely on suspend-before-low and doing everything we could to make my blood sugars smooth overnight. The worst part (for me being 17) was I wasn’t allowed near any alcohol the whole time I was on holiday! That was BEYOND frustrating, no alcohol on holiday?? I’d actually been looking forward to that part of the holiday. But no. Plans ruined.

However. The most interesting thing I found over the week was that I didn’t notice I didn’t have it on. Taking my sensor off had that typical relief of taking a plaster off, but I expected to feel ‘free’ without it sitting on my leg 24/7. But I didn’t. I also didn’t feel like I was missing anything (when I don’t have my pump on it feels like I’m missing a whole limb!). I simply didn’t notice. It was really quite weird. I guess it means I don’t care about wearing the sensor physically, when it’s on it’s not a hassle so when it’s off I don’t notice it being less of a hassle – because it just isn’t.

I also felt more in control of my diabetes which you wouldn’t think. (Bear with me – read to the end. I’m being completely honest here). Because on holiday I had been thinking about diabetes more, I’d been thinking about what my sugars were more often as I had no means of double checking easily. I was having to be more proactive with my insulin adjustments with walking, the weather and everything really. I was having to concentrate on it so much more so I was much more aware of what my sugar was and generally how I was doing. I felt really ‘on it’. I didn’t simply glance at my pump and realise I was 16+ (which happens) or realise that I’d been on low suspend for ages (which also happens) and then act accordingly. I was on it before my bloods had gone out of range. It really felt great to be that ‘in control’.

Yes, it was a good experience to have with it being interesting to compare, I couldn’t maintain that permanently. For one week, I can think about diabetes more and be more proactive with keeping on top of it, but I couldn’t do it every day. So back in the uk with a sensor I fell back into relying on low suspend to react for me and diabetes just became less effort overall. That’s the way I think I like it too, in hindsight. Because whilst I might not know exactly how I’m doing and maybe not feel as ‘on it’ my sensor makes it easier for me to get on with my life yet still have okay blood sugars.

I enjoyed being off my sensor, but it was a relief to go back to it. So I wouldn’t give it up again willingly. Plus I think my poor mum who was up all night every night watching my bloods prefers the sleep that a sensor brings……


A Diary of a Day with T1D

What is it like in the head of a 16 year old with type 1 diabetes? For 1 day I thought I’d write a diary of what goes through my head and what I do on a day to day basis with a Medtronic 640G with enlite sensors. Quite honestly I’d completely run out of topics to write about, but I thought this could be a bit of fun! (I’ll include photos below so you can see some of the things I’m talking about.) This is actually a bit of a longer post than I expected but if I cut any out it wouldn’t be an accurate day in the life!

So my day started at 01:16. Am. Yep. On a Sunday morning with a deliberately and meticulously planned lie in – I’m awake at 1am! But that’s perfectly normal for a diabetic. My pump’s alarming: Suspend before low. Okay, so I could test. If I am low obviously I’d need to treat it. But I know my sensor has been pretty damn accurate all day so as it says 5.1 with only a gradual drop and I don’t feel low at all I’m going to leave my pump to it. 

06:50am – I wake to find my pump sirening in my ear, literally sat next to my head yelling at me “Sensor expired”. We figured out it would do this last night so I simply cancelled it and went back to sleep. 

09:30am, I wake up to find my mum grinning at me – “morning!” and testing my finger because as I didn’t have a working sensor we had no idea what my bloods were doing and I usually wake up in the 5s or 6s often with a patch of no insulin so I could have gone low. (Especially this morning considering I’d woken up at 4.1 yesterday). I was 4.9 and persuaded out of bed by the promise of eggs and bacon. 

10:00ish? I had taken all my tablets and done everything I needed to diabetes wise so I ate. As I’m scraping my plate I’m asked if I’ve given insulin….. so I say “dammit. No I haven’t, I find it so hard to remember to bolus when there’s no carbs in the plate!” We pause for a moment. “What about the baked beans?” Mum asks. Then I think back and remember the piece of toast on my plate too. Whoops. 

11:00am (I know, I know, don’t judge!) and I finally decide that a shower is a good idea. But, today I have to do a sensor and a set change so after putting the transmitter onto charge, I rip out the old sensor and notice the filament isn’t quite straight and there’s some blood round the plaster at the top. I’ve had some issues with sensor not finding blood sugars recently so the bent filament could be one of a few explanations that Medtronic warned us of. 

11:38am, I’m sat typing up all of the above and realise I’m not actually wearing my insulin pump yet from taking it off for the shower. Eek. Cue scrambling around under the wet towel to find the, thankfully waterproof, insulin pump. Plus I felt a bit shaky as soon as I got out the shower, so my first thought was hypo or possibly high but upon testing and being told I’m actually 6.6 I realised I’m probably just tired! 

Now, still 11:40, the two of us are sat at the table trying to figure out how to test the transitter to see if it’s working. Well, mum is. I’m just sat here being close for pump signal purposes really. Usually I would put in my own sensors but we need to try different ways round to face the sensor so I’ll need help with that from an outside eye plus I have no idea if I’ll be able to pull the needle out from the new angle. 

But as mum is sat looking busy, I’ll start setting up my set change. I’ve had some incidents in the past few weeks where I’ve injected and taken the needle out or ripped an non-working set out and it’s bled – the set actually didn’t stop bleeding and I was covered in blood (no joke) but that’s a story for another time. So I’ve put a few cannulas in my stomach to try and reduce the blood-related incidents. However, when I’m putting a set in my stomach I have to been careful because I have lots of raw nerve endings around my scar still so occasionally I’ll get a near excruciating set change (whereas the others I barely feel) and I have to stand stock still and try to not even breath it is such a sharp pain. 

Today was one of those set changes. Ironic isn’t it considering it’s the day I’m writing about it all? Luckily it was no where near as bad as it is usually so I could sit down and move around almost immediately. Normally it wouldn’t hurt like that but sometimes I’m just unlucky. But that’s that done until Wednesday. 

Now for the sensor. (It’s now 12:00pm). It went as normal except the needle didn’t come out easily and then it bled…. after I’d stuck the overtape over it. So I couldn’t clean up the blood at all. I now have no idea if this sensor will work at all!! 

At 13:00pm I’m very aware that I don’t have the sensor to beep at me if I’m heading out of range so I might need to test soon. But I’m sat painting my nails and take it from someone who smudges their nails at every possible chance, testing with wet nails is not an easy feat. I definitely didn’t feel low, I did feel a bit high but as I found out earlier I’m quite tired. It’s so frustrating sometimes as tiredness is hard to distinguish from high symptoms! 

At 14:00pm we’d just sat down for lunch and I had that tell tale thirst that isn’t just your normal thirst, it’s the one where your mouth isn’t dissimilar to the Sahara Desert. I tested and I was 14.4. Okay, so maybe my bloods were climbing a bit earlier on. As we’re tucking into our food I realised I should probably give some insulin for the mound of fries in front of me, knowing I always underestimate how many carbohydrates are in fries I think initially 45 or 50cho, so up it to 60 to be safe. Aaaand back to the food. Until my pump beeps again (after it had been beeping for me to tell my new sensor my most recent blood sugar every 5 minutes before I tested and had to turn the sensor off as I was too high to calibrate the number) but this time my pump is saying “Insulin flow blocked”. Brilliant. Somewhere in the tubing or set there’s a blockage or kink or something. It was a new set too, so it could be a bad set. I’ve had quite a few of those recently. 

I uncliped my pump and then we had to take the reservoir of insulin out and rewind the part of the pump that pushes the insulin in before replacing the reservoir. (Mum did it because I was still eating.) But we were sat in a restaurant! It’s so embarrassing to sit there with it beeping, I’m going “Mum! Stop it!” Because you can hold it closer your lap and it will get quieter but mum just goes “What? I don’t mind.” But I do! I live with my pump on silent for a reason! Then we had to work out how much insulin had actually gone through…. this was quite amusing. 

Mum: “okay 2.6 units have gone through. It wants to give 11.5u.”

Me: *mentally subtracting 2.6 from 11.5*

Mum: “9.4u!”

Me:”What? It’s 8.9u.”

Mum:*complete look of surprise* “Really? Are you sure?” 


So we did give the right amount in the end thankfully. But it was a bit more of an eventful lunch than I was after really. 

As my mum and I were walking down the road we bumped into some of her friends, but ended up talking about medical things! It seems to be a common topic for me and my mum. Sometimes I can get into huge conversations about various medical things in my life,  and frequently do, but today it wasn’t that long – just explaining that I felt at home with the St.John’s Ambulance girls I spent yesterday with because I’m not out of place with all the medical based things that happen there anyway! I don’t mind talking about others medical things and medical events but if I’m talking about my ow problems I get self conscious really easily, which might surprise some people because I know it doesn’t seem that way! 

15:54pm I was supposed to meeting a friend in 6 minutes. So I scrambled my stuff together and was about to walk out the door. I should have tested as I had been high before lunch, but I was late to meet said friend so testing was put off. 

Diabetes didn’t come up again until dinner actually, at 18:40pm I grabbed my test kit from the bag where I’d put it at my lunchtime test. It had only been 4 hours and I was 11.8 so nothing had gone too badly at all but I should have tested and given insulin in between those tests. My friend who was with me joked about how much she could remember in terms of diabetes because in high school we spent so much time together that she picked it up amazingly well and was so on it with T1, but even though I hadn’t seen her for 3 months she still knew what my bloods meant and what everything I was doing pre-meal was for! We always mention it somehow when we see eachother, but that’s okay with her. 

On another positive note, for the first time today I gave insulin before I’d started eating! I completely guessed the carbs as I had noodles but considering I was 8.2 about hours later I was happy. 

21:00pm was roughly when I was 8.2, but the only reason I tested was when I glanced at my sensor to find out it was till turned off from the high blood sugar at lunch. Whoops. But, it’s easily sorted so I tested, turned it all on and put my number into my pump and hey presto, hello working sensor. 

Finally, my last (I hope) diabetes moment of the day is the nighttime test. 22:15 I sit down and test – 6.7. Aaaand my pump beeps “suspend before low”. Okay. Well, as I did almost 21 hours ago I will leave my pump to do it’s job. If I pretreated because I’m going to bed I would definitely go high. Maybe I would treat if I’d been in the lows 5s or 4s, but the 6s? That’s a bad night in the making. I’d end up awake at silly o’clock needing a drink and unable to sleep. So I’ll leave it be and if I stay getting symptoms I’ll test and treat as needed. 

So that’s my day! This was a normal day for me. No two days are the same, for instance today didn’t involve any hypos, temporary basal rates, revision (affecting blood sugars), sports, big meals, injections, barely any low or high symptoms (the ones I did get were nothing compared to what I’ve had before) and there weren’t any big conversations about T1 which are somehow a common occurrence for me, either me making a comment nor anyone asking me about it. There would also usually be a hell of a lot more beeping from my sensor going on to tell me I’m going high, low or that it can’t find a reading. But as I didn’t have a working sensor all day, you guys missed the tuneful side to my average day. But, in short, that’s what goes through my head on a pretty minimal day! 

Filling the reservoir with insulin:

The new set and filling it:

My new and slightly problematic sensor:

Type 1 Diabetes: Does it hurt?

Needles are a big part of having diabetes. It’s the emotional side of it all that people seem to talk about being difficult or painful, but you can’t forget about the needles.

  • 66,000 finger tests. 
  • 9,808 insulin injections. 
  • 1,185 set changes. 
  • 714 sensor changes. 
  • 50 blood tests/IVs. 
  • 16 flu jabs. 
  • 4 minor operations. 
  • 3 major operations. 
  • A multitude of other scans, procedures and tests. 


That’s 77,700 needles. Not including the set changes that went wrong, the extra injection of insulin to help a high blood sugar come down. 77,700 needle because of 1 missing pancreas. 

As a diabetic, you get asked a lot of questions. For instance:

“Can you eat that?” 

“Did you eat too much sugar?”

“Is it contagious?”

When they see your pump – “What is that?”  

All of these questions generally come from people you’ve only just met, strangers to the world of type 1. They’re innocent questions that you can explain and that person will walk away knowing more about your condition. 

But there is one question that is asked by everyone. Not just the newcomers to your life but your friends, family and loved ones. 

“Does it hurt?”

“No,” I say. “I’ve had so many needles that it doesn’t hurt anymore. I can barely feel it at all.”

I’ve grown accustomed to just automatically repeating those exact words! Every time I’m asked, (which is quite frequently) I say my line, I smile and that’s the end of the conversation. But I’m lying. 

No, it doesn’t always hurt. It’s also not the worst pain in the world. But type 1 diabetics are not immune to pain. Just because I don’t have a functioning pancreas, or a pancreas at all, it doesn’t mean I have suddenly lost all sensation in my skin, which is why it frustrates me when I’m asked that question. 

It hurts. Type 1 diabetes is not only emotionally difficult, it is also physically painful with all the needles. 

It’s only a tiny aspect but worth mentioning anyway, I always feel the needle when I prick my finger. That’ll probably be a surprise to most but it’s true, after it is still a needle, however small! 

Set changes, sensors, insulin injections – yes, they hurt. Everybody says “Oh it’s fine! I don’t really feel it!”, myself included. I don’t know about anyone else, but I know I’m not being truthful. 

It’s a needle. Going into your skin. Sometimes for a short length of time. No, it’s not agony. Yes, all pain is relative. Of course I will get set changes that are fine and I barely feel, but they don’t weigh out the other type. And that makes putting a needle in yourself really, incredibly hard. You know you’ll feel it go in, it will hurt, sometimes a little, sometimes moderately and occasionally severely. But you have to press the button anyway. And you do! You press that button without barely a hesitation because you’ve done it so many times that you just don’t have the time to care about it hurting anymore. 

Last but not least, blood tests. IV insertions. Everyone whose had one or the other knows how much they hurt. Whether you’re diabetic or not! I might be sat there smiling and chatting with the nurse, even pointing out a couple of previously good blood test spots (because trust me you get to know where your good veins are and where you prefer them sticking the damn needles over time), but they really, really do hurt. As I said before, all pain is relative and there will always be a worse amount of or type of pain, but needles being shoved into your veins are pretty darn painful (and sets and sensors are a doddle in comparison)!

But, you do it. You do all of it. You put up with all the needles and all the hurting, because you just have to. I don’t spend a whole day dreading a set change, I don’t get all nervous before a blood test. I don’t even know if all of this hurting but ignoring thing is the same for other diabetics, I’ve never asked anyone if they think it hurts. But as a result, personally I’ve found that when a non diabetic tells me about a needle they had or will need, I do often think – really? You had that one bad blood test? I’ve had hundreds. Or you’re panicking about a flu jab in 3 weeks’ time? Pfft. Diabetics aren’t the best people to go to for sympathy with needles because usually I’ll have had the same experience or worse multiple times, but I do try. Because I know what it’s like. Way too well. 

So don’t ask me if it hurts. The answer is yes. But I won’t tell you that because I’ve gotten used to dealing with it now and I don’t want your pity. So my answer is no, because I can cope with it. 

Please feel free to like, follow or share your experiences in the comments! 

Insulin Pump Sets: Moving Location

**This isn’t necessarily an information post, it is my own  experience and learning tips.

I think I have probably worn a set or a sensor everywhere you possibly could. I’ve worn cannulas on my arm, stomach and bum whilst having sensors on my thigh, stomach, bum, lower back and arm. Obviously not all at the same time.

I first got my insulin pump aged 6, starting on sof sensors the very same day. I can proudly say I will have been pumping for 10 years on the 14th of December this year!! When I started I had both my sensors and cannulas in my bum, always along the very top because I was a creature of habit and would never, EVER rotate.

It took me years to finally pluck up the courage to ask to try a set in my stomach. I’d gotten to the point where I was embarrassed to say where my set actually was when my friends tried to follow the tubing and I had just started high school, so aged 11 I bravely decided to change the location of my set.

Best decision of my life!

It was a big change, but suddenly I had so much more tubing to spare! I also got more confident about telling people what my pump really did, I wasn’t afraid to even show them the set if they were interested. A year after this I learnt how to do my own set change because of course it was now so much easier to do as its in front of me. Although I struggled with this, a diabetic friend of mine sat down with me, taught me and encouraged me. He’d put one in himself only 1/2 an hour before that so it was a really good method of learning for me because he had experience in this. (Because it is very different learning it from a parent who puts the set in someone else).

Although I then didn’t do a set change myself for about 18 months so I had to relearn it which was terrifying. This time we had another method of learning because I didn’t have another diabetic to help me, but it was just as effective. (This must’ve been ages 13 now?) We started off with my mum doing it all and I put my hand over hers when she pressed the button. Then I held the button/indents myself but she pressed it (her hand over my hand). After a few set changes like this I found it less scary to put one in myself. I did like my mum to supervise me setting it up though as this was one of the most nerve wracking parts for me, if I got it wrong I was worried it would be a painful set and everything would go wrong! But that didn’t last for long. Now I have no issues doing any of my set change myself. (We used a similar method for learning how it do my own sensors).

I also have tried many different types of sets and sensors over the years. I’ve done silouhettes (45 degrees), quick sets (right angle), mios (right angle) and mio 30s (30 degrees). Sensors wise I’ve had the sof sensors which were the old Medtronic ones and honestly were horrific…… I now have enlites but have trialled the dexcom too.

I’m still a creature of habit but I’m definitely a lot more open to trying new areas. Since then, I changed site location again to my arm which I now prefer to any of the others! For some reason I just find it easier to press the buttons with my arm, probably because it is just muscle in my arm, so how could it possibly hurt? I use the mios still because of their all in one packaging and ease of insertion. Then for now I have my enlite sensors in my thigh, using the original inserter instead of the newest one-serter (rather than press the button and then unpress it to release and then press the button to free the sensor from the inserter, you have a button either side you press to fire the sensor in and simply pull the inserter off. I have to say I prefer my original one because of clunkiness but the newer one is simpler to use). I don’t believe the enlite sensors are actually licensed for the thigh, however I find that it is not painful there, it’s out of the way on my thigh and the readings are very accurate in comparison to other places for me.

But one of the most important things about learning how to do sets, sensors and moving the location of any of them is I chose when we did all of it. And in fact I sometimes still ask my mum to do it and I’m 16! Just mostly because I’m sick of doing it myself and need a break. I know some adults ask their friends or family to do thier sets for them still, for exactly the same reason as me.

Why I’m writing a post about all this is because I wish I had the opportunity to give my younger self some advice –

Change may be scary, but you never know what you might be missing.

Where do you wear your set and/or sensor? If you have any tips or tricks of your own please share them in the comments! And feel free to ask me any questions about anything in this post or parts of this I haven’t covered.

Ignoring the CGM – Why?

Have you ever heard of #CGMArt?

Neither had I until a few weeks ago. It’s an interesting concept…. because you’re turning the negativity of the swinging BG levels into a piece of art which is a silver lining and a good aspect! But to have a true masterpiece you must first have had atrocious control for at least 12 hrs…… So surely this is not logical. Although this is something I actually believe I might have already achieved. 

Possibly more than once….

Rather efficiently too.

How do I achieve a mountain range of a graph, you ask?

Or, more specifically, you ask why I don’t answer my CGM alarms. But I don’t know how to answer your question, because there are simultaneously so many answers and yet none at all. 

Honestly, I think one of the biggest contributers to my lack of response to the CGM is the length of time I’ve had it. This coming December it will be my 10 year pump anniversary (on the 14th) and I started on my sensor the same day. I’ve grown accustomed to wearing it, inserting it and the alarms going off all the time. I’m SO used to it that I answer it automatically, not registering what it said or that I should do something. I just….. 


Cancel message. 

Then I carry on with my life. That can happen quite a few times in a row and it often results in mega high blood sugars or slightly high bloods for long periods of time. 

I have to say I do seem to take notice of the low alarms and my smartguard turning on much more than the high alerts….. I guess that’s to do with the more immediate effect of the hypo. There is a danger of me collapsing, having a seizure or worse, right there and then. But highs, they’re different. 

I feel invincible. Maybe it’s because I’m a teenager, but it doesn’t feel like anything would happen to me. It won’t be me that develops the complications. It won’t be me that could go into a coma because my blood sugars can’t come down from the high. It won’t be me, because I’ll be fine. 

So I think, subconsciously, I always think like this when it comes to the CGM. I think that I can put off dealing with the high even though they’re just as serious  as lows, in thier own way. 

Probably the other main reason for ignoring the alarms, is simply that they’re not interesting. I have a life with exams, friendships and activities that are all more interesting or more import than the alarm. So I just turn it off because I have better things to do with my time. My CGM alarm simply isn’t that important at that moment in time so I intend to deal with it ‘in a little while’ aaaaaand then I forget about it completely. 

I know that sounds idiotic, but I honestly have conversations with my mum that go something like this:

Mum – “Can I see your pump?”

Me – “Sure.” *hands it over and carries on texting*

Mum – “Uh, have you seen your graph? You’ve been high for the last 4 HOURS!”

Me – “Oh?” (Knowing exactly what’s coming.)

Mum – “Hmmmmm. You have alarmed high every 1/2 an hour for the last 4 HOURS! And where are the tests? The insulin? NOTHING!”

And my response is simply “I forgot.” And I’m not lying when I say that. I just don’t do it. 

Because ignoring it is just easier. 

Because life happens. 

Because I just forget. 

Are you guilty of creating #CGMArt?Or maybe you struggle to understand diabetic logic around CGM alarms? Share you thoughts, opinions or questions in the comments!



Medtronic Bloggers and Advocacy Gossip Day:)

I’ve had a very interesting day today. I was dragged along (by my mum) to a type 1 diabetes bloggers and advocates meeting at Medtronic, in Watford. When I say dragged along, I mean, I eagerly followed her. Medtronic get ideas and/or feedback from us about various projects or products, and in exchange they tell us what their next steps are, and what the latest news is in the Medtronic (pump therapy) World. And oh my word was it exciting to hear what will be coming!

Also invited to the meeting were:


Little D (can’t find a Twitter account)


And other t1d advocates and a couple of company representatives (all diabetic, or a parent of a diabetic) (and mostly adults with the exception of two teens including myself) Ninjabetic, The GrumpyPumper and The Tangerine Diabetic all also usually go but weren’t there today.

Did you know that the UK only has UNDER 10% (about 8 or 9 % to be precise) of type 1 diabetic patients on a pump?!?! It is in the same percentage category as places such as Serbia, Kazakstan and Russia! Whereas places such as Italy, Hungary, France and Canada have 10 to 20 % on pumps? Surely we should be alongside these country’s statistics?!

But, thankfully, that was the only disheartening aspect of today. However, the next thing I learnt today pushed that disappointing fact very far from my mind. They are developing a system (there is absolutely no timeline on this) called MiniMed Connect. And it is exactly what the name says, the MiniMed platform connecting…. WITH A PHONE. An iPhone, (perfect for me then!) with the pump and CGM being seen on the phone screen. The user would still have the pump, and use it whenever, but your pump would have this little transmitter-y thingy kept near it which would basically just allow the phone to show the pump screen using a cloud or something. I don’t understand the technical business, but I understand the !!!PUMP BEING ON AN IPHONE!!! part. It would be able to be transmitted to up to 5 devices, so yours and for instance, your mum’s.

This is working in America, or being trialled, I’m not sure what was said exactly, but it only works with American pumps so sadly it can’t be bought in America and brought to the UK by a family member or someone similar:(  The system would work with the 640G, but not the Veo. There’s a press release somewhere about it, if I find it I’ll link to it. It’ll have more details than I can give you.

Medtronic will also be setting up a Facebook page (finally!), and we were asked to write down ideas about what they could post, link to and make the Facebook page about. We were each assigned to one of the 5 subjects, me being assigned to ‘Teenagers’ with the other teen there (17).

Some of the things we put were:

– Exams and managing stress, revision and blood sugars. What is available equipment and resources wise. Such as CGM, even if it is self funded for the exam period, or having a seperate room.

– Social, how to explain and talk about diabetes and pumps to friends, boyfriends/girlfriends.

– Puberty, parties, alcohol, sex and drugs.

– Driving

– An introduction to diabetes for newly diagnosed teenagers (there seemed to be children and adults but a gap where teenagers help and guidance would be, in the other teen’s area)

– Case studies, real people coping with real, actually did happen, diabetes crisises i.e. Being on stage and having a low, how it was dealt with.

(There was one more, but I can’t remember it now.)

Oh and I mentioned funny memes and pictures, to keep things light on the future Facebook page !

The other topics were pregnancy, hypoglycaemia, parents and guardians and a random column for interesting topics.

We then had a guest speaker who spoke about percurement (who had been dressed like us in the morning sessions, mixed with us and was genuinely type 1 diabetic but had actually been disguised as he was actually the guest speaker!)

I can’t talk about what he said at all, as I understood barely any of it! I do know that it was about where the funding for pumps and CGMs came from and who makes all the decisions about who has them or not. The bits that I could understand were very interesting.

(I know this next but seems a bit random, but I wanted to mention it somewhere in this post and here is as good as any a place!)

I like Medtronic as a pump company a lot. Smartguard, customer service, support, actual products…. I personally feel as if you simply can’t beat them. I do wish they’d bring out a tubeless pump or at least a fully functioning remote control, but that, as of yet, hasn’t been brought out, (I’m praying that they’re developing or at least thinking about developing one!!!).

Overall, it was an excellent day and I can’t wait until the next meeting! I sincerely hope I’m invited again. I really look forward to the future of pump technology too!!!!!!

(Oh and disclaimer: I wasn’t asked by anyone to say anything I have in this blog post.)

(Look how amazing their latest pump is!!!! And sensor!!!! COMBINED!!!)



My brand new MiniMed 640G!!!!!!!!!!!!!!

I will start off by just clarifying that my brand new MiniMed 640G, is in fact my insulin pump. Now you know what I’m actually on about, I can start!!

So, at the beginning of February, the 2nd I think, I was due a new insulin pump. But, I wanted the new all-singing all-dancing Medtronic pump (said 640G) which was launched on the market that very same day I was due one. Basically, that meant I couldn’t get my hands on it during that appointment on the 2nd disappointingly. We were then told I would get it within that next couple of weeks. But, we are talking about the NHS here. (Don’t get me wrong, I love that it’s free and cares for you, but boy is it slow. If the NHS and a snail were in a race to get the best time, the snail would probably win, being faster). We were told they had to order the pump, train the hospital staff who were meant to train the patients blah blah blah.

So here we were, 2 and a half months later, finally getting my new pump! September before last, so 2013, I took part in the trials for the 620 which was virtually the same as the 640G except it was minus a few features and it isn’t actually available (a slight problem if you want it…. But the 640G is better, so the 620 probably lays in the corner forgotten somewhere).

My mum and I therefore didn’t strictly need the training for my new pump, having been trained a little over a year before and we were going to just stop by the hospital and pick up the pump a few days before the official training day. It then turned out that I knew 3 of the people going and were good friends with them, so UCLH managed to squeeze us in and 2 of my friends and our mums made a day of it (they both live nearby me).

Our training was in the afternoon, so after getting the train up there with them, we found a place called Kamps (I recommend it, it is utterly delicious!) just down from the hospital (UCLH). I’d eaten there before (and will definitely go back!) and had my usual tuna melt with a caramel coffee frap (both mouth-wateringly good!). I couldn’t for the life of me remember what carbs I had given, or whether it had worked last time I ate there. So, I guessed. My friend, and fellow diabetic, also had a tuna melt (minus my amazing drink) and we guessed slightly differently. I did 10 carbs more than he did (I still think I was closer carbs wise hahaha!) and added on what I guesstimated for the caramel thingy-majiggy. We had to wait and see who’d guessed better! A mini competition of sorts!

The training was fun, I won’t go into details as my post is already super long (I do hope I’m not boring you now! If you’ve managed to read this far, thank you very much! I really appreciate views and always forget to say thank you!). It was a rather hot and stuffy room we were sat in for a good 3 hours, and halfway through the session I had to test. Hello mr blood sugar of 18.0. Fabulous. I’d under-bolused horribly, and the heat hadn’t exactly helped. Luckily it came down quickly but annoyingly my friend’s blood sugars were perfect even though he bolused less (and he had a donut so we had roughly equal carbs!).

We got a new pump, a new transmitter for the sensor and a new test kit! (Contour link next USB 2.4!!) So all very exciting. The training was good fun, we already knew most things we were taught but it reminded us. The main thing we didn’t know about, only rumours and other friends being on it (and Twitter of course!), was the smart guard. (The CGM and pump work together to turn off the insulin to prevent a low blood sugar!! The graph turns orange for when smartguard is active!) Oh my word. It’s so cool! I’ll do another post on it and how it works:)

After training, those of us who travelled up together went out for dinner…… All bolused using our new pumps…… Then we travelled home……. And on the way home my smartguard activated!!! I was so excited, I couldn’t stop looking at it!

love my new pump and all it’s extras! I really love it!!!:) 

You can see how my day went with blood sugars haha!!


Second photo you can see the smart guard just activated because I was dropping!

Last photo you can see smart guard had been on (same section of smart guard as photo above, just hours later!). Apologies for the atrocious nail varnish, I really need to sort it out.

Sadly the smart guard didn’t work in this instance, and after giving it every chance of working, even not having lucozade when I tested at about 22:10 and was 3.5. The smart guard reached its maximum time – 2hours – and had to switch off. At which point I was 3.0, and feeling it very much so. However, later that night it activated again, and worked!